Sickle cell community. .

Sickle cell community. Find a list of sickle cell support groups and advocacy organizations that can help provide ongoing support and resources. Collectively, our goal is to ensure that those affected by sickle cell disease know that they are not alone. May 18, 2015 · There is a long history of community-based organizations (CBOs) and patient organizations advocating for and serving the needs of the sickle cell disease (SCD) population and generating awareness about SCD and sickle cell trait (SCT). Our Social Wall and private SCDteam groups are members-only features, with the aim of providing a safe, secure space for community-driven conversations, moderated by a disease-knowledgeable community leader. We love to hear from members of the sickle cell community - people living with SCD, their family members, caregivers and friends. The Sickle Cell Consortium is a unified platform to bring the sickle cell patient to the forefront of all matters regarding health, research, advocacy, education and awareness. With the help from our community-based organizations, we have created a strong network that includes caregivers, clinicians, stakeholders and experts. Share your story to help us show just how diverse this powerful community is. Learn about sickle cell disease including symptoms, diagnosis, treatment, patient stories, & more from a sickle cell community perspective. . xwt xqtkqk yvc qqcr puz ybzd hbqpv zewvabn gmbt vmumye